To pass the time Aurora and I have been watching a lot of movies.  We usually start by picking a theme like John Wick, disaster movies (our favorite) or Disney movies.  We got on a Denzel Washington movie binge one day and decided to watch John Q.  I hadn’t seen it in years but remembered the premise, Rory had never seen it and wanted to watch it.  Twenty minutes into the movie we looked at each other and I said, “Wow this feels very familiar, should we stop?” She said, “Of course not, I have to see Denzel kick ass.” It was a little hard to watch honestly, I could completely understand what John Q was going through.  The desperation, the helplessness and the refusal to take no because of money or insurance as an answer to making his kid better. 

As many of you may have noticed, I’ve been quiet. Not texting or answering calls as much because answering the same questions all the time is an energy drainer.  Repeating over and over that you don’t have an answer yet is defeating so I often avoid it.  The truth is, we got a call Monday saying Aurora had been accepted for an evaluation.  Then a while later we got a call saying our insurance was denied.  Of all the things I was worried about, insurance hadn’t crossed my mind.  There are lots of things going on behind the scenes to make this happen.  Unfortunately, it means more waiting for an answer.  And the roller coaster ride of emotions continues. 

No isn’t an answer we’re willing to accept. I may not go into Duke Hospital with guns blazing although I have thought about it.  But like John Q, I have to take actions before time runs out because my kid’s life is on the line.  The waiting is like death by a thousand cuts but in the meantime, I’ll be doing everything I can in order to get her to Duke.  I have a sense it will include lots and lots of paperwork, phone calls and anxiety attacks.  If we have to, we’ll go to our local rep, the news, anyone who would listen to her story.  Aurora has so much determination to get through this, it shouldn’t be this hard.  

When we know something, you will know it to.  Until then we will be here continuing our Movie binges. If you have a good movie binge theme, be sure to let us know.

Thanks for reading and stay tuned. 

Love, 

Michelle & Aurora