24 Days Later  

The title sounds like a scary movie about a virus or a segway in a SpongeBob episode, but it’s the number of days we have spent in the hospital. So much can happen in three and a half weeks so to summarize I’ve made a list. 24 days (about 3 weeks) is a long time, and I hope once we are home we don’t have to return for a while.  There are things about being here that make life a little easier.  There is always someone available to help with anything from a shower to decision making. We are excited to go home, see our dog who we miss very much, and sleep in our own beds.  Aurora is excited to get more Bucket List items done, wants to redecorate her room and is looking forward to Prom Dress shopping and Prom itself. Once we are home, we look forward to reaching out to many people about the help they have offered on some of the Bucket List items. 

10 days (about 1 and a half weeks) in a Medical Intensive Care Unit 

14 days on 10 Hale 

A decorated room when we got to our regular floor (Thank you Courtney, our favorite child life specialist) 

So many polaroids with all the nurses and visitors 

A visit from Memere and Auntie Janet 

Laughs, tears, worries 

“I 💚Rory” written in the snow by a mystery person 

Walks to Fenway (Mostly Target) 

Sleepless nights (Mostly because it’s never dark and never quiet in a hospital) 

So much Uber Eats because cafeteria food gets old fast 

Cake decorating (Rory made me a Pheonix out of Fondant) 

A private screening of Mufasa 

Wicked on repeat 

A visit from Liam & Family 

A visit from Bob 

A nail polish rainbow 

So many discussions with so many different doctors 

A New G-tube and lots of new supplies

A Botox treatment for nausea 

A Harry Potter Marathon 

Rory’s heartbeat put into a song with music therapy 

A visit from Julie 

A Crumble Cookie gift 

New Bi-Pap Equipment for home 

A Chess game night with Liam, William & Emily 

Doggie therapy with the Golden Girls. Harley & Rey 

Scoop & Scootery on repeat, Late night ice cream deliveries 

Voicing My Choices is complete (tough discussions & lots of tears and laughs) 

Rory made playlists for the upcoming Prom & her services 

Rory created door signs for the other patients and rooms on 10 Hale 

Daily visits from our favorite Art Specialist Brooke 

5 books off my TBR list 

A visit from Mary & Reilly 

Lots of Starbucks